‘Stigma and discrimination still persists’ against people living with HIV – UN labour agency

Health, Society, World

Based on 13 country team surveys throughout the world, the International Labour Organization’s (ILO) HIV Stigma and Discrimination in the World of Work: Findings from the People Living with HIV Stigma Index, draws on interviews with more than 100,000 people living with the virus.

“It is sad to see that despite years of work, stigma and discrimination still persist,” said Shauna Olney, Chief of the ILO branch which deals with gender, equality, diversity and AIDS, speaking in Amsterdam at the launch.

“But treatment alone is not sufficient. We must work harder to reduce stigma and discrimination for people living with HIV at workplaces. They have a right to work and no one should deny them that,” she added.

Co-written with the Global Network of People Living with HIV, the report was introduced during the biennial International AIDS Conference “AIDS 2018”, which has been taking place this week; the largest conference on any global health or development issue in the world.

The data highlights a number of findings, such as that 10 out of 13 countries recorded a 30 per cent or higher unemployment rate for people living with HIV, with a greater rate among HIV-positive youth.

And women living with HIV are less likely to be employed then their male counterparts because of unpaid care responsibilities, and a lack of independent income.

Moreover, unemployment among HIV-positive transgender people in all countries remains high.

Hiding their HIV status

Another key finding reveals that their HIV status costs many people their jobs – often because of employer or co-worker discrimination.

“When information about my [HIV] status reached my manager, he called me to his office,” said an anonymous individual facing discrimination, in the report. “First he told me I was working badly – doing too little work. Then he asked me to submit my resignation, without any serious explanation – as if I were resigning voluntarily.”

As a result, many people are hesitant to disclose their HIV status. to employers or even co-workers. Testimony from Cameroon, in West Africa, shows the extent of the problem of accessing employment:

“I went to pick up my appointment letter only to be told that I had to undergo a medical examination. I already knew my sero-status, which I told the human resource officer about. She said I had to do the examination which confirmed my HIV-positive status. That marked the end of getting the job as they could not recruit me even though I had passed the interview,” said one anonymous interviewee.

Similarly, HIV-related discrimination remains a major cause for not receiving job promotions.

“What this report shows is that we still have a long way to go in our efforts to combat workplace related stigma and discrimination against people living with HIV,” said Sasha Volgina, GNP+ Programme Manager. “Access to healthcare and access to employment are inextricably linked and as such a meaningful commitment towards stemming the epidemic and securing the wellbeing of all people living with HIV, cannot be met without prioritizing ending HIV stigma in the workplace.”

Creating a Framework for HIV Survival


New report calls for a broad, national coalition to advance the issues facing long-term survivors of HIV

 A new report from The Reunion Project on HIV Long-Term Survivors Awareness Day (#HLTSAD) calls for a national coalition of survivors of HIV to advance the needs of survivors in four key areas: research, programs, community building, and advocacy.

The Reunion Project, a grassroots initiative started in 2015, honors the history and future of survivors of HIV. With the advent of effective combination antiretroviral therapy, more people living with HIV are surviving and thriving than ever before. In fact the majority of people living with HIV/AIDS in the U.S. today are over 50 years old, and in two years it is estimated that 70% will be over age 50.

For the first time, The Reunion Project held the National Roundtable Forum, a community-led, diverse coalition of advocates who are survivors of HIV from across the U.S. in March 30–31, 2018 at the Annenberg Center for Health Sciences in Rancho Mirage, California. Over the course of one-and-a-half days more than 50 advocates convened to develop a national HIV survivorship advocacy agenda.

The main objective of the Roundtable Forum was to come to a consensus regarding a coalition of survivorship, and to begin a process to build a sustainable and powerful movement.

The report states that, “The needs and priorities of survivors of HIV are many and varied, but there is strength in diversity and in coming together to share our stories. Woven through these heroic stories of survival is a common thread of pain, trauma, healing, and overcoming challenges and obstacles while working toward a common goal. A strong coalition of survivors with a single voice and clear message is desperately needed to advance the needs of survivors, as we continue to battle the long-term effects of medications, isolation, post-traumatic stress disorder, stigma, aging, and co-morbidities, to name a few.”

The Reunion Project National Steering Committee includes Chris BartlettPhiladelphiaJeff BerryChicagoGregg CassinSan FranciscoWaheedah Shabazz-ElPhiladelphiaMatt SharpBerkeley, CALouis SpragginsChicago; and Jeff TaylorPalm Springs, CA.

The Reunion Project National Roundtable was made possible by support from Gilead Sciences, Bristol-Myers Squibb, Merck, Walgreens, TPAN, and Eisenhower Health, and was hosted by HIV + Aging Research Project-PS (HARP-PS). For more information and to download the report, go to https://www.tpan.com/reunion-project